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The central research question of the current study was, “How does gender identity affect the experience of living with endometriosis?” A chronic condition with limited treatments, endometriosis is understudied. Almost all research on endometriosis addresses the condition as a “women’s issue.”
The current study utilized semi-structured interviews with 10 individuals with endometriosis, 6 participants of whom openly discussed their experiences specifically as transmasculine and trans nonbinary people with endometriosis. The author of this study, also a disabled transgender person with endometriosis, served as the interviewer and developed a 9-minute documentary from the filmed interviews, which they wish to present. (https://youtu.be/ZPRaFIIDcdo?si=gnaCq-Yyg4snJ4Or)
Dialogue from interviews was transcribed and coded to extract common themes in patient-perceived feedback about the current medical treatment of the condition. The findings of this study have implications for improvements to the offering of healthcare in a way that is trans-affirming. More research is needed to understand the unique experiences of trans people living with chronic health conditions.
Lee Mariño Clyne is an out queer and transmasculine non-binary disabled Latine student.
They are also a certified full spectrum doula, healthcare interpreter for Spanish, medical assistant, and current applicant to medical schools.
Lee dreams of one day providing gender-affirming surgeries, and they are passionate about being there to support members of their queer and trans community through various health journeys, however they can. The research they are presenting examines trans peoples' experiences of endometriosis. Lee has endometriosis themself and has led research focusing on the mental health impacts of chronic pain conditions, on endometriosis specifically, and trans health more broadly. Their current work for the trans community is as Co-President of QueerCare Inc., a nonprofit for the Bay Area and NYC that offers free pre and post-op support to trans people undergoing gender-affirming surgeries.